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About Jonathan

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a little thing

One thing I’ve learned thus far, with cancer treatment, is how rewarding it can be to just focus on one small thing that you can accomplish.

For example, I nursed this tiny aloe plant — which my kiddo picked up in after-school care, a few months ago — back to health. When I first saw it, it was totally brown, and basically appeared to be dead. I moved it into a new pot with different soil, and I have been periodically watering it (taking care not to over-water).

Now, I’m pleased to see that all the brown has been replaced by green, and a new leaf is appearing.

Admittedly, this is a little thing. But for me, it means a lot. I take a few moments with this plant every day, and I just appreciate it. I look at it as a symbol of my own cancer treatment journey. This would be one small piece of advice I can offer to others starting out on treatment for cancer, or other big scary diseases: find a little thing to feel good about.

Quick notes on my current status:

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Please consider your local food bank

As I was en route to daily radiation appointments over the past month, I passed by my local food bank every day. And I noticed lines of people waiting there … really, really long lines. I’ve donated to this food bank before, typically at the end of the year, and so I’m on their mailing list. They recently shared the following:

March, April, and May were the busiest months in the 41-year history of the University District Food Bank and due to this we’re facing a $200,000 budget shortfall.

I’m assuming they (like all other non-profits) receive fewer donations outside of the holiday season, so I just sent them another donation.

I encourage everyone reading this to please consider donating (either your dollars or your time) to your local food bank. Alternatively, another worthwhile charity to consider is Feeding America.

Radiation complete

I finished up my 5 weeks of chemoradiation yesterday and rang the bell, while the radiation therapists gave me a round of applause. I was surprised to learn that this is a relatively new tradition, dating back to 1996. It is a gratifying feeling, actually, to commemorate the milestone. Cancer treatment is an extraordinary amount of work (mentally, physically, emotionally) — so, a graduation-esque ceremony is fitting.

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Penultimate is a great word

My sister sent me a text this morning, congratulating me on this penultimate day of my scheduled chemoradiation sessions. Indeed! Just one day to go. Well. Of Act 1. This play isn’t over yet — Act 2 (chemo) starts in about a month. That second act will be four months long, with new and more intense side effects.

But, I am looking forward to a nice break between the first and second acts.

While this first act has had its challenges, it’s also been teaching me things.

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Radiation boss level

Just as they told me: side effects are worse this week. Sunday was bad; a lot of nausea and trips to the bathroom. The doctor had recently prescribed diazepam (Valium) to reduce (possible) rectal spasms. I took one of those, and that certainly helped me sleep.

Monday morning I was well-rested and everything was great. But shortly after my 3:15pm radiation session, the waves of nausea came back, along with some abdominal pain.

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Out from the hobbit hole

[editor’s note: I just realized I didn’t give this post a title, before. Fixed this, the day after posting.]

I was honored to virtually meet Brianna Mercker and Natalie Phelps today. They have both experienced their own battles with colorectal cancer, and are committed to raising awareness via their leadership and extensive volunteer involvement with the Seattle Walk to End Colon Cancer.

This was my first time speaking with others who are acquainted with my specific cancer diagnosis; it was very helpful and inspiring. I’ve also been appreciating recent connections with my friends who have other experiences with cancer — my colleague Matt (as a caregiver), and my friend of 25 years, Kari (she went through a different form of cancer, eight years ago).

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Sunday Lucid Sunday

A M-F chemoradiation schedule means that Sunday is a relatively lucid day — the brain fog dissipates. On this Fathers Day, I have been scurrying through to-do lists, taking advantage of this opportunity when I’m thinking clearly.

As Princess Kate rightly mentioned a few days ago:

….as anyone going through chemotherapy will know, there are good days and bad days. On those bad days you feel weak, tired and you have to give in to your body resting. But on the good days, when you feel stronger, you want to make the most of feeling well.

Just two weeks of chemoradiation to go! I’m feeling excited about that, along with some trepidation, as the final week (and the week after) are typically the worst in terms of side effects.

Yesterday, I was still chemo-foggy so I did simple things, such as picking a bunch of strawberries from out front. It’s amazing that all of these strawberry bushes came from a few starts that someone gave me, a few years ago.

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For health, for strength — for eating fun.

Wrapping up my third week of chemoradiation treatment, I can say that the side effects have gotten more pronounced, day by day — as expected.

  • In my first week, I had some mild fatigue. In my second week, those side effects became more noticeable: I’d forget things, feel generally slow and lacking in energy. I also started to feel some intermittent nausea in week two. All that was the capecitabine: the chemo pills.
  • But in the third week, the effects from the radiation started to kick in: intermittent burning sensation (mild) in my rectum, intermittent periods of bathroom urgency, pain while pooping, and pain while peeing. Occasional butt pain when I’m just sitting (seems most noticeable when I’m driving). All that stuff kept me up last night; I was in the bathroom a lot. Which meant I was sleepy and slow today.
  • Brain fog seems to be the worst on Monday evenings, after dissipating on Sunday (I don’t take the chemo pills on weekends).
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