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About Jonathan

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For health, for strength — for eating fun.

Wrapping up my third week of chemoradiation treatment, I can say that the side effects have gotten more pronounced, day by day — as expected.

  • In my first week, I had some mild fatigue. In my second week, those side effects became more noticeable: I’d forget things, feel generally slow and lacking in energy. I also started to feel some intermittent nausea in week two. All that was the capecitabine: the chemo pills.
  • But in the third week, the effects from the radiation started to kick in: intermittent burning sensation (mild) in my rectum, intermittent periods of bathroom urgency, pain while pooping, and pain while peeing. Occasional butt pain when I’m just sitting (seems most noticeable when I’m driving). All that stuff kept me up last night; I was in the bathroom a lot. Which meant I was sleepy and slow today.
  • Brain fog seems to be the worst on Monday evenings, after dissipating on Sunday (I don’t take the chemo pills on weekends).
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Chronicling CRC cancer

I’m returning to an old blog I had set up over a decade ago, to share observations about the stage 3 rectal cancer diagnosis that I received on Apr 2, 2024.

Currently I am about halfway through daily (M-F) chemoradiation treatment at Fred Hutch Cancer Center in Seattle. Fortunately I don’t live far from there — the drive is around 12-15 minutes — so I am able to accommodate these daily afternoon visits in my work schedule.

As more folks learn about this — my colleagues, extended family members, and friends I have made throughout many chapters in my life — I feel the need to provide more of a regular cadence of updates. I have been attempting this through a google doc, but I’m going to switch to this medium and see how it goes.

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Happy New Year

I spent much of the past month in Washington state: at work in Seattle for a week and up at my parents’ place up near the Canadian border for the holidays.

Here’s another electronic track I’ve composed over the past month — built using three different ipad apps and countless iterations, ending with long periods spent obsessing over granular sonic details, up at my folks’ place, in front of the wood stove:

 

 

Topolino

I was in Seattle last week for work, and spent the weekend working on another ipad musical project. As I worked on this, I noticed two tiny mice scurrying about the apartment. They were surprisingly bold around me, running right up to me and checking out my feet. So. I dedicate this song to those miniscule mouse muses. “Topolino” is Italian for “little mouse.”

Here at work now in the Manhattan office. This is a late-waking city. I got on the subway at 7:35am and it was relatively empty — rush hour apparently hasn’t started yet. I got off at Grand Central and walked to my building, which is a few blocks away. In the lobby, a man in custodial garb eyed me suspiciously and walked towards me: “where are you going?”  I said “to work” and kept walking towards the stairs (the office is on the 2nd floor).  He said “2nd floor or 3rd floor?”  I told him 2nd — I’m not sure why he asked that. Perhaps he was just making conversation — this is something we Seattle ex-pats can’t quite handle until we’ve had our coffee. 

I work in a small office (Manhattan branch of a Seattle-based company) that is in a group of small offices with a shared receptionist, kitchen, conference room, etc. The main door to the suite was locked — at 8am! Remarkable. They had given me an access code and keyed the biometric lock to my right index finger (I know this technology has been around for a while, but it still feels very sci-fi to me). That got me in — and there is not another soul in here. 

Digital music composition, then and now

25 years ago, I used to mess around with rudimentary music composition software on my family’s Atari 800 XL computer. I don’t remember what the software was called, but basically it allowed me to plug notes onto a musical staff. I remember using it to work on a song — for weeks and weeks I slaved away, and after all that work, I had come up with nothing but an unimpressive, one-dimensional midi file.

Things are different today. You can download a few apps and tinker about on an iPad for a few hours, and — voila, you can compose a fairly interesting chunk of music. This is what I’ve been up to over the past few days. I’ve been using Addictive Synth to produce basic sound structures — the app enables endless manipulation of sonic components (note all the knobs).

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The zen puzzle, pigeons

Busy week; I just started a new job that had me down for a training meeting in Atlanta. Well, not Atlanta, but whatever you call the amalgamation of hotels, restaurants, and convention centers around the airport. I’ve been reading a few books by contemporary urbanists that describe the shift towards development around airports — we always build cities around transportation hubs, and airports today play the role that marine ports played in previous centuries. What you see sprouting up around the Atlanta airport is not sustainable and depends on cars. I’d be curious to see an example of high-density, walkable mixed-use development around an airport. There is the noise issue, however…hm. A broader question: how long will airports be the primary transportation hub — what will replace them? Continue reading

And now we dance

I was walking back from breakfast just now when a grizzled, non-sober old fellow, maybe 80 years old, smiled at me broadly, pointed at my jacket and then at his, and said “they’re the same.”  The jackets are vaguely similar — well, they’re both black. He reached out to shake my hand and I told him “we’re twins!”  (I am an old man at heart.)  He kept hold of my hand and suddenly started dancing with me, doing a sort of twirl around me. This just lasted a couple of seconds, and then he gave me a salute and we were both on our way.