Post-infusion day: recap

I’m copying a summary I just shared in an online forum (Colontown – highly recommend this to all colorectal cancer patients!):

– I got very little sleep last night (like maybe one hour) due to the steroids. 

– I was surprised to find I wasn’t tired this morning (perhaps I was still artificially “energized” by the steroids). 

– I’ve had no diarrhea, which is surprising, given the irinotecan (aka “I run to the can”) that I received yesterday. Instead, I’ve been more on the constipation side.

– didn’t really have any notable nausea today, but I did notice a decrease in appetite.

– I’ve had some intermittent difficulty swallowing. 

-No other noticeable signs of neuropathy. 

Around 7pm this evening:

– Felt tired and dizzy after walking my dog. 

– felt brain fog / confusion, and fatigue. Tried running  quick errand to the grocery store, and that was overwhelming. 

Hoping to get more sleep tonight. 🤞 Not sure if I will take tomorrow off from work as well. That feels overwhelming to think about right now.

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