I’m copying a summary I just shared in an online forum (Colontown – highly recommend this to all colorectal cancer patients!):
– I got very little sleep last night (like maybe one hour) due to the steroids.
– I was surprised to find I wasn’t tired this morning (perhaps I was still artificially “energized” by the steroids).
– I’ve had no diarrhea, which is surprising, given the irinotecan (aka “I run to the can”) that I received yesterday. Instead, I’ve been more on the constipation side.
– didn’t really have any notable nausea today, but I did notice a decrease in appetite.
– I’ve had some intermittent difficulty swallowing.
-No other noticeable signs of neuropathy.
Around 7pm this evening:
– Felt tired and dizzy after walking my dog.
– felt brain fog / confusion, and fatigue. Tried running quick errand to the grocery store, and that was overwhelming.
Hoping to get more sleep tonight. 🤞 Not sure if I will take tomorrow off from work as well. That feels overwhelming to think about right now.
Thanks for the update. Love you!