A marketer’s take on mortality

I have a unique combination of a philosophy undergrad degree, coupled with an MBA. After earning the MBA from University of Washington, I spent several years in various marketing roles. Given my background, it’s perhaps no surprise that this article, published today, deeply resonated with me: Creative directing my cancer.

The author, Nathan Phillips, explores how a cancer diagnosis can open one up to deep insights, which I agree with:

Cancer connects us to our values, to what’s important and ultimately can shift our perspective so we appreciate living. Without cancer, it’s easy to forget. Cancer doesn’t just kill you, it makes you live. It increases your life experience by reducing your life expectancy

One key difference between this author’s situation and my own is that he received a “death timeline” of one year (maximum!) which he has now exceeded. To be clear, I received no such timeline; in my own kickoff discussion with my cancer care team, back on May 2, the message was upbeat: this is Stage 3 and it’s treatable.

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There’s also other things

A cool thing about being 50 years old is that there are a lot of years to look back on and appreciate. I find it helpful to realize that, although cancer absolutely defines my current life experience — and is in many ways similar to massive, complex project management initiatives I’ve worked on — it does not define my entire life.

I was up to other things in past years. Fun things! For example, 14 years ago, I lived in Manhattan, and one time hiked the length of it. Looking back at the post, it’s surprising that the free map app I used at the time is still around; the map of my route is still in there. So many other free apps I used back then have long since died. I’m actually surprised my old blogspot blog is still around (with a link to a posterous blog, that long since died).

So, I may indulge in nostalgia now and again, to add a little variety to this otherwise cancer-focused commentary.

As a child, I was an obsessive chronicler of life’s mundane moments. Seriously, I have hundreds of pages of journal entries describing meals, what I learned in school that day, who was present at youth group, etc. Fortunately, I also kept a dream journal, and that’s a lot more interesting to review.

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Back to the land of the living

I am feeling normal-ish today for the first time since last Monday morning. This past week involved, I believe, the most intense fatigue I’ve ever experienced. One way to describe it is simply that you’re not fully alive. For example, I worked (as well as I could) this past Friday, and I was in a meeting with many participants. In the meeting, I felt like a ghost, peering into a gathering of alive people: people whose brains function normally. It was similar to the experience on my diagnosis day — everyone sure seemed to be talking awfully fast. And normally, I am one of those people.

But this past chemo week, I was a ghost who spent much of the time in bed. Ordinarily my brain moves quickly in a multi-threading fashion (maybe everyone’s does?); there are usually a few things going on in parallel, one idea sparking another. All that shuts down when I’m a chemo ghost.

So, high level observations from chemo cycle 3:

  • The on-site infusion experience was so godawful BAD. That feeling of my jaw clenching, and the manic jitters all day long… holy hell, what a nightmare. I am all about medically mitigating these horrors in future infusions, via my friend lorazepam (aka Ativan).
  • As noted, much more fatigue this time, over the subsequent days.
  • As with cycle 2, pump disconnect day was hard. I drove myself to that appointment, but in retrospect, that was unwise. I was way too brain-fogged to be operating a vehicle. I’ll be enlisting chaperones for the remaining pump disconnect visits.
  • More nausea this time. It’s still not something bad enough where I feel I need to take the anti-nausea meds they gave me, but if it gets worse in future infusions, yes, I may give those a shot.
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Chemo-hibernation

I was super-wired during the infusion on Monday. That feeling got pretty intolerable near the end of the irinotecan infusion. I was exhausted, yet very jittery. The nurse checked on me and seemed concerned. After someone else came in and they noticed my slurred speech (this did happen for me at the end of my first irinotecan infusion), they decided to give me something to alleviate that (can’t recall what it was).

I slept ok that night, and then the past two days have really been all about major fatigue. It’s like I crashed from the weird all-day mania that happened on Monday. Yesterday and today, I’ve been too exhausted to do really anything. Haven’t checked social media, and have had a hard time replying to anyone. Pretty dense brain fog — particularly today. Went in and got the pump disconnected this evening — that’s a wrap for infusion 3.

Currently on the fence about returning to work tomorrow AM. If tomorrow is anything like today, I won’t be able to function at work. Will see in the morning.

Today’s smoothie

I am still at Fred Hutch, although due to the late time, I have been transferred to another building, where I’m now doing the irinotecan infusion. This part is 90 minutes and this started at 6pm. With some stuff to happen after this. Long day.

No big side effects currently, another than ongoing jitteriness apparently caused by my pre-chemo cocktail. And, fatigue and brain fog to the max, but … now sing it with me … “That’s what chemo’s all about!” (Sung to the tune of Hokey Pokey!).

So, let me leverage my current delirious chemo-addled condition to describe for you: this morning’s smoothie. I know people are curious. At least you, Tad! :). So here we go – try and guess what’s in there. All the ingredients revealed below!!!

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Infusion #3

Greetings from Fred Hutch. My third chemo infusion is currently underway. It is unusually cold in this room today. Also, they decided to try a “slow drip” approach to the oxaliplatin portion of today’s infusion “menu.” That means that the oxaliplatin (which is “notorious” for its side effects, as one nurse mentioned to me today) infuses at half the rate, and thus takes twice as long: four hours rather than two. While this makes for a very long day (looks it will wrap around 8pm), the “slow drip” approach helps reduce the risk of any the 10 million side effects popping up.

I decided to skip the icing (cryotherapy) today and see how that goes. Wearing the freezing mitts and socks for four hours — in an unnaturally cold room — is a bit more than I can take today. I haven’t been having neuropathy issues over the last few infusions. So, we’ll see how this goes.

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If there’s anything I can do…

A phrase that you hear a lot from people, when you let them know you have cancer, is: “please let me know if there’s anything I can do to help!” Which totally makes sense. It’s hard news to process, and it’s hard to know what else to say.

An interesting twist, for me, is that I myself really find meaning in helping people. Various personality tests have revealed this for me, such as the Enneagram (in that test, I’m “type 2: the helper.”) This means, for me, it’s a bit of a paradox. You can help me — if I feel that I am helping you! This is part of the reason why I’m maintaining this blog: I’d like to offer my own journey with cancer as something that can hopefully help anybody else who gets a cancer diagnosis.

But I’d also like to help people avoid getting cancer, if at all possible. So, honestly the best way you can help me, is to please be inspired by my experience to do something (big or small … something!) to minimize your cancer risk. I’ve been absolutely delighted to hear about some folks who decided to get colonoscopies, after hearing about my situation. Also, I’d love it if you can help share my story (this blog, and my colon cancer walk page) with others.

Early on in my radiation treatments, back in May, I got stuck in a Fred Hutch parking garage due to a mechanical issue with the garage. There were all these cancer patients and their caregivers, stuck for many hours while the issue got fixed. I was fuming with rage about this, and I struck up a conversation with the woman next to me.

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My diagnosis experience

On April 2, 2024, I got a call I had been anxiously awaiting. A few days previous, I had a colonoscopy that revealed a large growth in my rectum: much larger than the polyps that can be removed during the procedure. The doctor had sent a tissue sample in for biopsy, and I knew she’d be calling at some point on April 2.

And I got the call, in the mid-morning. I was in the middle of a meeting at the time, but I stepped away to take the call. The doctor explained that the biopsy revealed that the growth is carcinogenic: in other words, I have cancer. She said the next step — happening that very afternoon — was for me to go get a CT scan, to determine whether the cancer had metastasized.

After the call ended, I had this very interesting experience. I felt like I was floating, up somehow, and observing my life. I considered the meeting I had just been in, with puzzlement — people had all been talking very fast, and using so many acronyms. So much focus on these very granular details that don’t ultimately have life-or-death significance (a day in the life of a typical technology firm). None of this seemed to matter, compared with the news I had just received. I thought about how I’m usually one of those people quickly spouting out acronyms in these meetings. Indeed, I can be, admittedly, a total firebrand at work — I dig in and debate! About .. acronyms.

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Goodbye, hair

I started noticing hair coming out on Sunday. Yesterday, I noticed more coming out; I’d run my hand through my hair and there would be a few strands on my fingers. Then I was noticing the hair strands other places. I checked my pillow: yikes. Lot of hair on there. I then decided: need to shave my head sooner, rather than later.

So, shaved it off last night.

Don’t think I mentioned before, folks in our neighborhood have been very kind. Word has spread around about my diagnosis, and neighbors have been dropping off meals for us. They even know about my crazy vegan diet (with occasional eggs). We received a delicious meat-free shepherd’s pie, among other fine meals.

Off week going ok thus far. I really do not like giving myself the nightly shots, and I’m wondering if I have to keep doing that for the remaining eight cycles. I’m also wondering, with trepidation, if the cycles are going to get worse from here…

Hello off week!

Some folks have been reaching to me with concern after my last post. I’m ok! Slept very well last night, and I’m at work this week. Looking forward to this, an off week — a blessed break before infusion #3, which will be happening Mon the 19th.

I was able to connect with a nurse at Fred Hutch earlier today and talked through all of the “weirdness” I struggled with last week. That was an incredibly helpful call. First, just in validating that I’m not alone in this struggle to even articulate what the heck is going on. the nurse confirmed for me, this is a normal struggle for chemo patients. Also, she provided some tips on what I should actually be worried about. Because that’s always my question, with any new symptom or sensation – do I dismiss this, or look into it further? The numb lips, she said, is normal with oxaliplatin. With the port, yeah, I’m going to feel it; it’s ok (the main thing with a port is to look at the skin area for signs of infection — there are none). And she gave some other practical advice as well, for which I’m very grateful.

Also, I think hair loss has started for me .. just a bit. Yesterday I put product on my hair (just to get it out of my eyes) and then I noticed that there was a lot of hair stuck to my hands .. the product is sticky, but that’s never happened to me before. This morning, I’m noticing more of my hairs .. on my phone, in random places. I’m assuming this is the beginning of chemo hair loss, so I’ll probably shave my head at some point this week. This isn’t really concerning for me; I’ve shaved my head many times in the past. Just something I’m noticing.

Thank you, all, for your concern and support! 🙂